Time to start a new journey.

2 Sep

This post will hopefully be the last one on this blog, apart from perhaps the odd confirmation that things continue to go well.

Our big news is that we were joined by our beautiful baby Elliott Lewis on 25 August 2014! Weighing 2.140kg and at 33 weeks 4 days gestation.

Luckily we had a little warning so were able to get some steroids in a week before he arrived and he was able to breathe unassisted from the start. His little tiny organs have done their job wonderfully and only a week later he is actually off all support and just sleeping in a warmed cot. He is still in hospital but after 7 nights he was moved from NICU and is now working his way down to special care. The last thing we need to do is get him to feed by himself as the instinct to suckle hasn’t quite developed yet.

But we feel so lucky! It’s a great gestation after an adventurous pregnancy and he is simply beautiful. Beyond beautiful.



First picture






1622218_10152689383863210_3795710373421148138_n Last photo is 1 Week later.

But for me this is the end of a long road, and the start of a new one. I couldn’t have believed we would be in this place only 20 months ago when I was diagnosed, Elliott is surely a miracle baby, helped here by the hands and love of many many people. There were lots of hard days, frustrations and just the ongoing fear and stress that illness brings – but every single moment was worth it when we hold our son in our arms.

My only advice would be to keep pushing on, even when doctors might give up, or the options available seem years away and the problems look insurmountable. However, I am fully aware that luck has played the biggest part in us getting to this point, so we are simply grateful.

Hopefully I’ll still hear from people through this blog and that it gives hope to women facing scary times and tough decisions. There can be happy endings!

Kath and Elliott


5 Responses to “Time to start a new journey.”

  1. Anonymous September 3, 2014 at 1:27 pm #

    We are so happy to hear that Elliot has come to be with you and we wish him a long and happy life. You must be so happy and proud , You have been on some journey the past two years, Love Hilda and John

    • kathclear September 3, 2014 at 11:06 pm #

      Thank you from us all. 🙂

  2. Hello Vera Juice October 29, 2014 at 4:44 pm #

    What amazing fantastic news for you. So very happy for you. xxxx

  3. RamPrasad May 3, 2017 at 9:04 am #

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  4. Gill May 17, 2017 at 3:08 pm #

    Just been diagnosed with stage 1b. Grateful to have been offered a trachelectomy. I’ve not had it yet so was googling it and came across your pages. Its been comforting to read about your journey and I wanted to post something To let you know. Also my little girl was born 2 days after your little boy, and I now have hope that she may be lucky to have a brother or sister one day.

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